a photo of my bed with all of my plushies on it. in the front and center are the four plushie dreadfuls i have. from left to right i have the nonbinary bun, the pots bun, the autism bun, and the migraine bun. to the left and behind them i have a pusheen the cat plush that is a gray cat with black stripes on its back. to the right and behind i have a baby stitch swaddled in a blanket and even farther right and behind i have a ghost plushie. in the center behind the plushie dreadfuls, i have a pink, circular pig, with a stuffy of puma the pig on top.
more about my conditions.
physical disabilities:
pots
hsd*
fibromylagia
chronic widespread pain
ibs-d
me/cfs
tmd**
costochondritis
endometriosis***
myopia and astigmatism which causes diplopia
eczema****
i have times were my hearing doesn't work well due to the structure of my ear canals along with ear wax so that's something.
*this disorder is very similar to heds, but it is the generalized disorder that is being moved towards for people who have issues from hypermobility.
**this shit causes so many migraines and headaches; it's insane.
***this is being treated very well for me, so whilst i have it, i am now close to asymptomatic.
****not a disability, but it pisses me of, so it's here.

mental disabilities:
autism
ocd
adhd
bpd*
ocpd*
dpdr
psychosis
depression
anxiety
*-like symptoms

looking into:
audio processing disorder
sensory processing disorder
misophonia
npd
narcolepsy
schizoaffective disorder
note: this is more as a reminder for me than anything else

extra info because i have a medical science spin and love infodumping and helping others who deal with similar disorders to mine!

disclaimer: this may not apply to everyone's experience. i am not a doctor. please talk to your doctor and do your own research.

for pots, i take 5 mg of midodrine 3 times a day and take two 500 mg salt pills with each dose. i wear knee-high, compression socks and drink as much water as humanly possible. i use a cane to help raise my orthostatic (standing) tolerance, as well as to help with chronic pain. i am currently doing physical therapy to help strengthen my muscles so they they can hopefully hold my joints better in place. i use heating pads to help with cramps and muscle pain and i use ice packs at other times (the differences in pain are very minute, and so i usually go with my gut as to whether the ice or heat is right for that type of pain). (as i write this, i am currently using a heating pad around my waist due to stomach cramps that pain in my hips are causing. let's go. i love disability aids.) propping my legs up when sitting and laying back in chairs, helps lessen my dizziness. of course, lessening my usage of my joints can help stop pain, but it doesn't always work and i do like moving (but if you're already in pain, just trying to keep still can possibly stop the pain from getting worse and maybe even lessen it).

okay, also, take fucking otc meds!!! if you fucking have them, take them. pain relievers are a godsend and help so much. i know, i get it. i deal with disabled guilt (or whatever it's called) a ton, but you deserve to not be in constant angony.

when to know when to take pain meds (disclaimer: i am not a doctor. this is based on my experience. please still follow the rules on how to take these meds): if you think you may need them, then you most likely do. but, to be more specific, for those who want to be able to better quantify it (i get it), if the pain is almost always on your mind, you should take it. if your barely to the point of being able to handle it, you should take it (and probably should have taken it a bit before). if you're more tired that day? and already feel bad? and the pain just makes everything worse? take it. you can help make that bad day just a bit better. has the pain been widespread throughout almost the entire day? you should take it. even if it's not awful pain, it being widespread is definitely up there with really bad pain in one location. is it a constant pain? again, take it. constant pain that just doesn't let up can be just as bad as bursts of really bad pain plus it's extremely distracting. overall, if possible, trust your gut and remember that you are allowed to have painless days.

also, for any of my ocders out there who are having a hard time finding a medicine for their ocd, i take a mix of cymbalta and seroquel that has helped me so much. like, i can go outside without constant worry AND my compulsions have been reduced so much. ofc, talk to ur psychiatrist and look into it. but just an option!

cymbalta also just helps anxiety and depression on it's own. and it's apparently supposed to help chronic pain? but i have never noticed it doing that for me. and remember to ask your psychiatrist about specific medicines instead of just ones that are given to basically anyone for any general thing (if you can narrow down your disorder, that can be very helpful).

and please, please go to therapy if you have the means to do so. it is so so helpful. and, if you're in a crisis, call someone, call a hotline. they are anonymous and you will not be judged for asking for help. also, if you are having an ongoing crisis, don't be afraid to go to a mental hospital if need be. they always sound and look really scary, especially in media, but a lot of them are decent. if you're able to, ask a medical professional (preferably a psychiatrist) which one they recommend and do your own research about them. they will evaluate what you need and will help you. plus, the people there are extremely nice. some may be shitty, but that's how any group of people works. overall, if you think it will help you and have the means to do it, do it. i have done all of these and they have all helped me heal mentally so much and have continued to help me. anyway, just stay safe, i love you <3

a good, free, therapy app that helped me when i was going through it was vos. you can buy an upgrade, but the structure itself was very helpful. also, self-help videos on youtube can be helpful and since i like figuring myself out, videos about why these medical disorders are like this can be very helpful. also, calm down videos are so so good. used so many panic attack talkdown videos when i was having panic attack after panic attack. also, talk to people you feel comfortable with.

Edit Report
Pub: 22 Jun 2023 05:32 UTC
Edit: 09 Mar 2025 06:29 UTC
Views: 771